Saturday, May 26, 2007

She's a Gem



My poor, poor baby. She is a rare Red Speckled Pearl. This pic is from yesterday, and she looks worse today... angry red hives that are so densly packed that she is encased in hot, itchy red. Her face is a mask of hives... there is not a square inch on her body that is unaffected.

Everyone has paraded through here... Pediatricians, Surgeons, Residents, every sort of Nurse you can name, Infectious Disease docs, Dermatologists... they all agree it is a drug reaction. But it is entirely outside their experience in the magnitude of the rash. Because the allergy could easily turn and close her airways.... we do not go home till she is done. But she is also profoundly at danger of catching something... anything, and this is a Hospital. Yay.

She has also chosen to grace us with at least one new eyetooth.

On the happier side of life, I cannot forget that she HAS dodged so many bullets, and as sucktastic as this is... it could be worse. If it follows the course that LaLa's polkadots did, she could be done in a few days. Of course, as soon as LaLa started exibiting symptoms, I discontinued the offending meds. In Pearl's case, they upped her intake for two extra days. We may be a while.

Interesting tidbit: the doc who did the surgery in December (the Two-Penny Incident) came in last night to talk to us. Turns out he was there as an assist in getting the sequin out. I wasn't aware of that. I asked him if he thought that it was possible that the sequin had been there all along and he kinda looked at me like I was crazy. He said that while no one could be sure about it, he believed that it HAD been there. He said it like he had no question in his mind that it was. This is a relief and a vindication to Dadguy and I... that the surgeon who had been there both times thinks so, and would actually SAY so. I never thought that I would get that kind of concession, if only for ego or insurance reasons.

This has been a frightening path, but I really do think that the bulk of it is behind us. Unfortunately it's my beleagered Pearl who has to gut out the last of it as she has the first.

And my sweet Chaos. I haven't talked about them much here. I can hardly bear to. They are safe and happy and loved... they are doing better than could be hoped for. My mom came from New Mexico to stay with them for ten days, they have been at Gramma's house and with my big Sis and SIL. I treasure the funny tidbits that I hear of what they have been saying and doing. Many blogworthy anecdotes that will live in my heart, but will never get any play here, mostly because I am hoarding them in my heart. But also because I have become the Queen of Not-Thinking-About-It.

I don't think much about "what if" or "why me" or "how much more?" I just think about what is here, what hurts, and what I can do about it. And I think about home. I think about going home and being the Chaos Family again. Dinner time. My homemade Fettucini Alfredo that everyone loves. I think about all the girls wearing swimsuits and running through the sprinklers. Otter pops. Camping trips. Reading books at bedtime.

I know I will find occasion to bitch about cleaning up two inches of slop from under the highchair after dinner, but I suspect that it will lack the rancor that it has had in the past. I suspect that I will be kvetching with a smile on my face, shaking my head in wonder

14 comments:

Anonymous said...

oh bon, she looks SO miserable. Poor lil' kid. How come they upped the dose after she broke out? seems like anybody would know better. Our prayers are with your whole family. I miss them. Love, mom

bon said...

Their first thought was of infection iat the surgical site, a leak in her esophagus, absessing and the like. She was burning up, and until she passed all her tests they were pumping her FULL of a cocktail of pretties.

We will never know if it was the "cillins" or the "myacins" that cooked her lobster, 'cause she's never getting any more of either. It's Sulfa-city for her from now on!

Jo said...

Oh bless her little heart. And her mommy too. You have had so much piled on your plate as of late, and yet, your love, sense of humor and gratitude shine though. Endure to the end takes on new meaning in times like this.

Tracey said...

Oh the poor little princess!! I'm so sorry she has to go through all of this... I hope they clear up faster than you project. Hang in there.

Shelli said...

This is going to come out as sounding trite and insincere, but nothing could be farther from the the truth. I pray that God will look down on you and smile and say that girl has surely had enough.

Mama D said...

'Sucktastic' is my new favorite word. Thank you for inventing it.

You must be so very, very tired. And I am so, so sorry. I wish I could come and help too. Because I totally would. My thinking cap is on...

bon said...

heh, I'm pretty sure I've picked up the word "sucktastic" on my bloggy travels...even if not, it is highly derivative of the "craptastic and sucktacular" of Zoot(zoot.com) fame.

at least, I THINK that's where it's from...

Jennifer said...

Awwww.... I feel so sad for little Pearl. And you.

I am wishing you home soon so that we can here about those highchair horrors again.

jd said...

I love "sucktacular"!! Ok I sent off a wee bit of funness but I mentioned how well Pearl looked in the pictures. Now with that disappointing addition to her normally beautiful skin I am going to have to retract that statement. Poor little thing.
Hope it clears up soon.

Fantastagirl said...

Poor little thing - she looks miserable.

Hoping she feels better soon!

sarah k. said...

Oh, the sweetheart. She has such a good mama. I told my mom about her and she nearly broke into hives herself, just out of sympathy. Loves and Prayers from the Hopefuls.

Meredith said...

Dear friggin' lord - you have had more than your share of the sucktastic - sending my good vibed that you and Pearl go home safe and sound soon!

sari said...

Poor baby! I know they'll get that under control soon but it doesn't make it any better, does it??

You've all still got all my prayers.

the Dread Pirate Rackham said...

even Sas came in and looked at Pearlie Wirlie and said "oh, poor baby!" So you have the sympathies of me and my wains. Like you didn't know that.

Sulfa is no free ride either - ugh. She will feel superduper sucktastic with that. Luckily she's not having to use her stomach. much.

But she's little - she'll get better before you know it!